Day 43
Hey ya’ll, happy Sunday!
Charlos had a good, restful night and is very calm this morning with good vitals; very encouraging.
Yesterday, the pulmonary doctor had Charlos taken off the CPAP ventilator mode and he is now breathing on his own with an oxygen ‘T-bar bypass’ support system. Basically, he has 40% oxygen passing in front of his trachea while he breathes on his own through his trachea. Currently, he has been off of the ventilator for over 16 hours with no problem; this is also very encouraging because this is a big step in the ventilator weaning process. It appears that he will continue with this set up throughout the day with regular monitoring.
His night nurse, John, commented that while turning Charlos last night, he did open his eyes for approximately five minutes. With Charlos moving towards a more conscious state, and coming off the ventilator support, we could be making a move to his long-term rehab sooner than expected; only time will tell. His other vitals have seemed to stabilize at comfortable levels with nearly no neuro storming or posturing. In addition to all of this, and the reducing and removing of some of his meds, it seems that his digestive track it’s functioning at somewhat normal levels. Again, another big win for Charlos.
Please pray that this progress continues, that Charlos wakes up and continues breathing on his own so he can safely move onto his next step of physical rehabilitation.
Thank you all for your continued prayer, love, support, and words of encouragement; they really help!
Blessings to all!
July 6th – Update from Kindred – Day 3
Today marks Day 3 at Kindred Hospital in Westminster, and we are feeling so hopeful. Los is showing steady signs of improvement and is much more peaceful in this new environment. The storming episodes have decreased significantly—some mild ones here and there, but overall, he’s calm and comfortable. For the first time in weeks, he wasn’t battling a fever and even got to cozy up with a blanket. Such a beautiful shift.
The staff here are incredible—deeply compassionate and attentive to both Los and all of us visiting. They’ve created a space that feels safe and supportive, and we’re so grateful.
We’ve learned that his foot drop is worsening. Without immediate stretching and movement, it could lead to extensive rehab or even surgery. The nurses have encouraged us to gently help stretch his feet and ankles—pulling the foot up and turning the ankle when he’s relaxed. His ankles are rolling outward, his feet turning in, and his legs are starting to cross—signs we need to help him now, together.
A family member will always be present during visiting hours and can assist in showing how to safely stretch and adjust him, as well as how to watch for any signs of discomfort or storming. Please don’t hesitate to ask—we’re in this together.
We encourage visitors! Being surrounded by familiar voices and loving presence makes a huge difference. Visiting hours are from 10 AM to 8 PM daily, and visitors must be ages 14 and up.
We also received more great news: his most recent EEG results came back clear—no signs of seizures, which confirms the previous EEG findings as well. 🙌
Today he is on the CPAP and is responding very well to it. Each day here feels like a small but meaningful step forward. Thank you for your continued prayers, support, and love. We feel it every single day.
– Lyndsay Wolf
